Bone thinning and “Schizophrenia” – What Are The Risks?
Osteoporosis (bone thinning) is defined by the WHO World Health Organisation as bone mineral density of more than 2.5 standard deviations below the mean value for peak bone mass in young adults – measured by dual energy x ray absorptiometry (DEXA). It has been discovered that high rates of Osteoporosis (bone thinning) in “Schizophrenia” may result from the prolactin raising effects of some anti psychotics. Prolactin is a protein secreted by the pituitary gland. Osteoporosis is hereditary. So, if you’re taking anti psychotic medication or have taken it in the past, it’s surely worth going to your Doctor to discuss this link. I’ve searched the NHS Choices website to see if Osteoporosis is listed as a side effect of anti psychotics but haven’t found any information. I’ve contacted DataPharm, who provide the information, for their comment. More soon.
It Wasn’t Me
For the first 37 years of my life I suffered in silence. Emerging from a dysfunctional childhood and adolescent depression I moved into adulthood only to be come ensnared in a violent marriage which brought me to the brink of insanity. Only by walking away did I postpone for 6 years what was to be a highly terrifying descent into psychosis, a six month stay in hospital, culminating in 6 horrendous treatments of Electro Convulsive Therapy (ECT). During the next 6 years I stumbled in the darkness of my soul and insult was added to injury when 10 years after my psychotic breakdown, I was diagnosed with cataracts in both eyes, caused by the ingestion of enormous quantities of neuroleptic drugs. I faced surgery twice and recovery from the second operation was both slow and painful. Seven years after my breakdown I’d given up the cocktail of medication. Withdrawal was far from easy and since 1993 I’ve relapsed on six occasions. I call that recovery. Others do not. Through talking therapies and cathartic writing I have broken my silence and found my voice. No one could hear my headaches or see my optical migraines. Now I know it is my responsibility and mine alone, to ensure that my mental well being remains constant and continual. By nurturing my psyche with good music, good nutrition and company of positive people – and by avoiding negativity as far as I can -I can achieve good health. I understand that the vagus nerve responds well to this regime and blood pressure and heart rate are attuned accordingly. More and more of us are now acknowledging the link between early life trauma and adult psychosis and the move towards demedicalisation of mental illness is gathering pace. Talking about distress and verbalising my pain has helped me process and absorb traumatic events and see, that once delusions and hallucinations have dissipated, the pain is unprotected – and hurts intensely. Without the cloak of madness I am vulnerable and raw, exposed and stinging. Healing comes when crying and talking clear and clean my psyche and allow new and happier memories to replace the wounds with genuine emotional growth – and understanding that it is a sign of strength, not weakness, that I survived those traumatic times and can now move forward, without looking over my shoulder.
GOOD ENOUGH PSYCHIATRY
Good Enough Psychiatry – 2 July 2013, London
Posted on March 27, 2013 by Rai
What makes psychiatrists effective for people who experience psychosis?
A joint one day conference for psychiatrists, for people who are treated by psychiatrists and for people who work with them or commission their services – hosted by ISPS UK and RCPsych Medical Psychotherapy Faculty.
Speakers and chair: Kevin Healy, Jen Kilyon, David Kingdon, Rose McCabe, Brian Martindale, Carine Minne, John Read, Elisabeth Svanholmer
Topics: What makes a good psychiatrist?; Experiencing psychiatric care; Ways of talking about psychotic experience; Cognitive therapy for psychosis or just clinical practice; Psychotherapeutic aspects of routine psychiatric encounters; Continuity in discontinuous worlds
Summary: Psychiatrists affect people with psychosis not just through the treatments they prescribe, but through their everyday interactions with patients and colleagues, and through the ways in which they understand and discuss psychosis and its causes. The ‘good enough’ mother described by psychoanalyst Donald Winnicott was ordinary, imperfect and busy – and also able to support her child to reach their fullest potential.
This conference will explore what it may mean to be ‘good enough’ as a psychiatrist.
Fees
ISPS UK members: £115
Non-members: £145
AS OF 24/6/13 SUBSIDISED PLACES AND A LIMITED NUMBER OF FREE PLACES STILL AVAILABLE
Unwaged service users and family: £40 (Please contact the office for availability of £40 places before paying on line)
Please also enquire about free places
Download: Good Enough Psychiatry Poster | Programme and Application Form
The NHS Choices Website – Your Choices or Their Choices? An update
I’ve received another email from NHS Choices
“Dear Madam,
The content of our drugs “Medicines A-Z” is provided by an external company called Datapharm. It is a comprehensive list but certainly different people can have different experiences on different drugs.
However, at NHS Choices we merely publish the content they provide.
If you have a complaint about that content please contact Datapharm.
Kind regards
NHS Choices”
I’m waiting to hear from Datapharm. Last Friday they told me “The Medicine Guide for Chlorpromazine currently covers the lens opacity side effect with a listing of ‘eye or eyesight problems’. I will refer ask our editorial team to consider the inclusion of a more explicit term, such as lens opacity. I will contact you in a week with an update to the status of this information.
More soon
The NHS Choices Website – Your Choices, Or Their Choices?
According to what was then my local Primary Care Trust, psychiatrists cannot be expected to know about the side effects of the medication they prescribe. What? Yes, it’s a given that medication has side effects. Lens opacity/cataracts is a side effect of some anti depressants, anti psychotics, and steroids.
I was 48 when I was diagnosed with cataracts. When I saw the ophthalmologist he said my cataracts were not the usual ones he saw in his clinic, and he asked if I’d ever taken the anti psychotic drug Chlorpromazine. I’d taken large quantities of Chlorpromazine ten years previously, while sectioned under the l983 Mental Health Act. The ophthalmologist said the Chlorpromazine had caused my cataracts. I had surgery in 2003, and 2008
Recently I followed the link Tweeted by @NHSChoices to their Side Effects section. I searched for Chlorpromazine and there, listed under Side Effects was “Eye Problems”.http://www.nhs.uk/medicine-guides/pages/medicinesideeffects.aspx?condition=schizophrenia+and+psychosis&medicine=chlorpromazine+hydrochloride&preparation= That was it. I note that since I made my enquiries it says “Eye and Eyesight Problems”.
I queried this on Twitter and was told the information was meant only as a guide. I went back to the NHS Choices website and contacted the NHS to ask why lens opacity/cataracts was not listed, arguing that patients could not make clear and informed decisions and choices, if the information given by the NHS was incomplete. Eventually I had a reply asking me to contact DataPharm http://www.datapharm.org.uk/with my enquiry. This I did. Back came the reply from DataPharm that I could contact some Pharmaceutical companies myself. I protested about this and had another reply to say sorry and that they did not list lens opacity/cataracts as a side effect of Chlorpromazine because it was not listed in the documentation they received from the Pharmaceutical company. Ah.
I contacted the manufacturers of Seroquel/Quetapine and they said the medication does cause cataracts in dogs.
I’ve written back to DataPharm and to the NHS Choices Website to say just because the Pharmaceutical company does not list this specific side effect it does not mean this side effect does not exist.
I’ve contacted APRIL (http://judithhaire.com/april-adverse-psychiatric-reactions-information-link/) and RxISK (http://judithhaire.com/rxisk-is-a-free-independent-drug-safety-website/) and let them both know how my enquiry to the NHS Choices website is progressing and I have now passed my email correspondence to my MP Laura Sandys for her comment.
To be continued.
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Far be it from me - 